Thursday, January 7, 2016

Iron Infusion Today. Woot woot.

So in a previous post I mentioned my hemoglobin was extremely low. The normal level for an adult male should fall between 13.5-17.5, well mine has been consistently low ever since I was diagnosed with Crohn's disease 8 years ago. Currently it's at the lowest it's ever been at 6.9. So I have about LESS THAN HALF of what a "normal person" is suppose to have in their body. 

Since my hemoglobin is so dangerously low my doctor was shocked that I was even standing without fainting. My skin is always white as a ghost and it's currently the whitest it's ever been. I HATE being this sick! It's so frustrating and there's nothing I can do which is the worst part. I can handle the bathroom trips, the arthritis, the headaches, the sleeping problems, the stomach pains and all the other symptoms that come along with Crohn's but low blood levels seem to be my "kryptonite". 

Having such low blood levels takes SO MUCH out of me. I'm extremely tired which is normal with people with Crohn's but this kind of fatigue is on a totally different level. I have been out of work for the past 15 days because my doctor told me that I shouldn't return to work until my blood levels get back to somewhat normal. He gave me a note saying "return to work to be determined". 

So today as I'm writing this I'm sitting in the infusion center at the hospital getting an iron infusion. Yes another stupid IV! That makes 2 in less than 3 days. NOT FUN! 


This isn't my first go around with iron infusions. A couple years ago I was a pretty regular patient here, I would get an infusion every 2 weeks for 3 months. So this is nothing new to me but that doesn't make it any more fun for me to be here again. If anything it makes me that much more annoyed. As I sit here listening to the bag of iron drip I just think when am I going to be normal? When will there be a cure? When will I get to be genuinely happy again? I just want to sleep ALL THE TIME! 

But then I think....it could be worse, it could always be worse. So I try and stay as positive as I can and put on my best smile. I keep telling myself I can get through this and I'll feel better soon. I am strong enough to handle this. I'm going on 9 years with this disease and I don't plan on giving up anytime soon. 
On a positive note, I did get a PB&J sandwich, orange sherbet and a Pepsi while getting this infusion. All of which were very good, that's a miracle because hospital food always SUCKS! But I don't think it's possible to screw up a PB&J, pre-made sherbet or canned Pepsi! Lol

It's been a rough day and as many of you with Crohn's/Colitis know there have been plenty of these days in our past and there are many more of these days to come. Keep on fighting and stay strong! One day....one day....

Peace out people,

Beau 

5 comments:

  1. Hey Beau,
    I added your blog onto the links for "Blogs of Note" on my blog, Jenni's Guts. I'm going to keep track of you and hope to bring more "traffic" your way. You're badass and I love your blog and pictures! Keep fighting!!!

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  2. I like orange sherbet. I'll put strong wishes and prayers for you. I started following the Dallas Cowboys (how I found your blog) two years ago but still Redskins fan too. I wish you the best.

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  3. Thanks Jenni! I'm back to blogging after being sick for too long. I'm feeling good and should be blogging more frequently so yes please share my blog! Hope all is well! 😄

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  4. Thanks for this. I really like what you've posted here and wish you the best of luck with this blog and thanks for sharing. Smoking Cessation Selangor, KL

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