Thursday, July 14, 2016

I got a new Baby Niece today!

Yesterday made me forget about my Crohns for a little while because I was distracted by the birth of my new niece Harper Rose! She's so beautiful and I'm so happy for my sister and her fiancé. 
This is my 5th niece/nephew so it's nothing new but with each birth my family grows and its special every time. I'm so glad my sister and the baby are doing OK and everything went well. Days like today make me so happy that I keep fighting my battle with Crohns and never give up. One day I want to have children of my own and a family of my own but I have to take care of myself first before that can happen. I don't think I could raise a child right now as I can barely take care of myself most days. Crohns just kicks your ass every single day but we have to keep getting up and fighting back and hoping for the day that cure will come. 
There's so many bad days that I have with my Crohns and I feel like giving up and not getting out of bed. Then there days like today that make me realize the fight is so worth it. 

Keep fighting and don't give up!


Entyvio Infusion #4

Hey guys I'm baaaaaack again. So on Tuesday I received my 4th infusion of the newest drug for Crohns/Colitis called Entyvio. Once again the IV sucked and my hand has been bruised and in pain since the infusion. IVs are annoying as hell and I'm sick of them but what can ya do. So far still no noticeable changes other than keeping weight on that I gained after my first infusion. I still have around 8 trips to the bathroom almost everyday, some days it's less and some days it's more depending on what I eat. But with Crohns you never know, one day I can eat one thing and I'll be fine and the next day I'll eat the EXACT same thing and I definitely will not be fine and I'll be in the bathroom all day. 

I was very hesitant to try this new drug after being off almost any kind of medicine for my Crohns for over 5 years. The side effects of meds like Entyvio are super scary and the one that made me the most hesitant was the rare brain infection that can possibly happen with Entyvio, where you can become disabled or possibly die because of it. No one can blame a person for being hesitant of trying meds with side effects this serious. But after 5 years of my Crohns being left untreated I said "Fuck it!" and decided to give it a go. So far I haven't got the results I was hoping for but at least I put on 15-20lbs after starting Entyvio. Before starting it was impossible to gain weight no matter what I did so I'm thankful for that. 

Going through what we go through sucks and no one should have to live life like we do. Crohns/Colitis fucking suck and I hope they find a cure soon. Keep fighting the good fight people and don't ever give up. One day we'll have a day! 

Get Well Peeps